When Emiliana Rodriguez was a little girl, she recalls watching friends play a nighttime soccer match when one of the players abruptly died on the pitch.
Unaware of what had transpired, Rodriguez, a native of Bolivia, developed a phobia of the dark and the “monster”—the silent killer known as Chagas—that she had been told only appears at night.
Chagas disease is a unique sort of illness that is spread by nocturnal insects. It is also known as the “silent and silenced disease” that infects up to 8 million people annually, killing 12,000 people on average.
Emiliana Rodriguez, 42, discovered she had to live with Chagas, a “monster,” after relocating to Barcelona from Bolivia 27 years ago.
“Night is when the fear generally struck. I didn’t always sleep well,” she admitted. “I was worried that I wouldn’t wake up from my sleep.”
Rodriguez had specific tests when she was eight years old and expecting her first child, and the results indicated that she carried the Chagas gene. She recalled the passing of her buddy and remarked, “I was paralyzed with shock and remembered all those stories my relatives told me about people suddenly dying.” “I wondered, ‘What will happen to my baby?’”
Rodriguez was prescribed medicine, though, to prevent the parasite from vertically transmitting to her unborn child. After her daughter was born, she tested negative. Elvira Idalia Hernández Cuevas, 18, was unaware of the Mexican silent killer until her 18-year-old son was diagnosed with Chagas.
Idalia, an eighteen-year-old blood donor from her birthplace near Veracruz, Mexico, had a positive diagnosis for Chagas, a disease caused by triatomine bugs, often known as vampire or kissing bugs and bloodsucking parasites, when her sample was tested.
In an interview with the Guardian, Hernandez stated, “I started to research Chagas on the internet because I had never heard of it.” When I read that it was a silent murderer, I became really afraid. I had no idea where to go or what to do.
She is not alone in this; a lot of people are ignorant of the diseases that these unpleasant bugs can spread. The term Chagas originates from Carlos Ribeiro Justiniano Chagas, a Brazilian physician and researcher who made the discovery of the human case in 1909.
Over the past few decades, reports of the incidence of Chagas disease have been made in Europe, Japan, Australia, Latin America, and North America.
Kissing bugs are mostly found in rural or suburban low-income housing walls, where they are most active at night when humans are asleep. The insect bites an animal or person, then excretes on the skin of the victim. The victim may inadvertently scratch the area and sever the skin, or they may spread the excrement into their mouth or eyes. This is how the T. cruzi infection is disseminated.
The World Health Organization (WHO) estimates that between 6 and 7 million people worldwide—roughly 8 million people in Mexico, Central America, and South America—have Chagas disease; the majority of these individuals remain oblivious to their illness. These estimates are provided by the Centers for Disease Control and Prevention (CDC). The persistent infection might be fatal if untreated. According to the Guardian, Chagas disease kills over 12,000 people year, “more people in Latin America than any other parasite disease, including malaria.”
Despite the fact that these bugs have been found in the United States—nearly 300,000 people are infected—they are not thought to be endemic.
While some people never experience any symptoms, the CDC notes that 20 to 30 percent experience gastrointestinal or heart problems that can cause excruciating pain decades later.
Furthermore, only 10% of cases are detected globally, which makes prevention and treatment exceedingly challenging.
Hernández and her daughter Idalia went to see a number of doctors in search of assistance, but all were also uninformed about Chagas disease and its management. “I was taken aback, terrified, and depressed because I believed my kid was going to pass away. Above all, Hernandez stated, “I was more anxious because I was unable to locate any trustworthy information.”
Idalia finally got the care she required after receiving assistance from a family member who was employed in the medical field.
“The Mexican government claims that the Chagas disease is under control and that not many people are affected, but that is untrue,” Hernández asserts. Medical practitioners misdiagnose Chagas disease for other heart conditions because they lack knowledge in this area. Most people are unaware that there is Chagas in Mexico.
The World Health Organization (WHO) has classified chagas as a neglected tropical disease, which means that the global health policy agenda does not include it.
Chagas is overlooked in part because, according to Colin Forsyth, a research manager at the Drugs for Neglected Diseases Initiative (DNDi), “it’s a silent disease that stays hidden for so long in your body… because of the asymptomatic nature of the initial part of the infection.”
Forsyth went on to say, “The people affected just don’t have the power to influence healthcare policy,” making reference to the impoverished communities. It’s kept hidden by a convergence of social and biological factors.
Chagas, however, is becoming more well recognized as it spreads to other continents and can also be transferred from mother to child during pregnancy or childbirth, as well as through organ and blood transfusions.
The main objective of the Chagas Hub, a UK-based facility founded by Professor David Moore, a doctor at the Hospital for Tropical Diseases in London, is to get “more people tested and treated, and to manage the risk of transmission, which in the UK is from mother to child,” according to Professor Moore.
Regarding the WHO’s 2030 aim for the eradication of the disease, Moore stated that progress toward it is “glacial” and added, “I can’t imagine that we’ll be remotely close by 2030.” That seems improbable.
Two medications that have been available for more than 50 years to treat chagas are benznidazole and nifurtimox, which according to Moore are “toxic, unpleasant, not particularly effective.”
Although the medications are effective in curing babies, there is no guarantee that they will prevent or halt the advancement of the condition in adults.
Regarding severe adverse effects, Rodriguez remembers getting dizziness and nausea as well as breaking out in hives. She completed her therapy, and she gets checked out annually.
Moore goes on to say that while creating stronger anti-Chaga drugs is crucial to stopping the disease’s spread, pharmaceutical companies are currently not financially motivated to do so.
As president of the International Federation of Associations of People Affected by Chagas condition (FINDECHAGAS), Hernández is on a mission to raise awareness of the condition until there is a greater need on the market for innovative treatments.
In Spain, Rodriguez is battling the “monster” as part of a campaign to increase public awareness of Chagas disease being conducted by the Barcelona Institute for Global Health.
“I’m tired of hearing nothing at all,” Rodriguez declares. “I want Chagas to be discussed and made public. I’m in favor of testing and therapy for individuals.
They are being heard, too.
World Chagas Disease Day was instituted by the WHO on April 14, 1909, the day Carlos discovered the disease’s first human case.The WHO states that “a diversified set of 20 diseases and disease categories are set out to be prevented, controlled, eliminated, and eradicated through global targets for 2030 and milestones.” And among them is Chagas.
To prevent a possible infestation, the CDC suggests taking the following steps:
Close up any gaps and fissures around doors, windows, walls, and roofs.
Clear out the rock, wood, and brush piles close to your home.
Put screens on windows and doors, and fix any tears or holes in them.
Close up gaps and crevices that lead to the exterior, crawl areas beneath the home, and the attic.
Keep pets inside, especially during the evening.
Maintain the cleanliness of your home and any outdoor pet resting places, and check for bugs on a regular basis.
If you believe you have discovered a kissing insect, the CDC recommends avoiding crushing it. Alternatively, carefully put the bug in a jar, fill it with rubbing alcohol, and then freeze it. It is then recommended that you bring the bug’s container to an academic lab or your local health authority so that it can be identified.
Please tell this tale to help spread the word about an illness that goes unnoticed!
The HOA President Fined Me Over My Lawn – I Provided Him with More Reasons to Pay Attention
Larry, our clipboard-wielding HOA dictator, had no idea who he was messing with when he fined me for my lawn being half an inch too long. I decided to give him something to really look at, a lawn so outrageous, yet so perfectly within the rules, that he’d regret ever starting this fight.
For decades, my neighborhood was the kind of place where you could sip tea on your porch in peace, wave to the neighbors, and not worry about a thing.
Then Larry got his grubby hands on the HOA presidency.
Oh, Larry. You know the type: mid-50s, born in a pressed polo shirt, thinks the world revolves around his clipboard. From the moment he took office, it was like someone handed him the keys to a kingdom.
Or at least, that’s what he thought.
Now, I’ve been living here for twenty-five years. Raised three kids in this house. Buried a husband too. And you know what I’d learned?
Don’t mess with a woman who’s survived kids and a man who thought barbeque sauce was a vegetable. Larry clearly didn’t get that memo.
Ever since I skipped his precious HOA meeting last summer, he’s been out for blood. Like I needed to hear two hours of droning on about fence heights and paint colors. I had more important things to do — like watching my begonias bloom.
It all started last week.
I was out on the porch, minding my business, when I spotted Larry marching up the driveway, clipboard in hand.
“Oh, here we go,” I muttered, already feeling my blood pressure spike.
He stopped right at the foot of the steps, and didn’t even bother with a hello.
“Mrs. Pearson,” he began, his voice dripping with condescension. “I’m afraid you’ve violated the HOA’s lawn maintenance standards.”
I blinked at him, trying to keep my temper in check. “Is that so? The lawn’s been freshly mowed. Just did it two days ago.”
“Well,” he said, clicking his pen like he was about to write me up for a felony, “it’s half an inch too long. HOA standards are very clear about this.”
I stared at him. Half. An. Inch. “You’ve got to be kidding me.”
His smug little grin told me otherwise.
“We have standards here, Mrs. Pearson. If we let one person get away with neglecting their lawn, what kind of message does that send?”
Oh, I could’ve throttled him right there. But I didn’t. Instead, I just smiled sweetly and said, “Thanks for the heads-up, Larry. I’ll be sure to trim that extra half-inch for you.”
Inside, though? I was fuming. Who did this guy think he was? Half an inch?
I’ve survived diaper blowouts, PTA meetings, and a husband who once tried to roast marshmallows using a propane torch. I wasn’t about to let Larry the Clipboard King push me around.
That night, I sat in my armchair, stewing over the whole thing. I thought about all the times in my life I’d been told to “follow the rules,” and how I’d managed to bend them just enough to keep my sanity.
If Larry wanted to play hardball, fine. Two could play that game.
And then it hit me: the HOA rulebook. That stupid, dusty old thing Larry was always quoting. I hadn’t bothered with it much over the years, but now it was time to get acquainted.
I flipped through it for a good hour, and there it was. Clear as day. Lawn decorations, tasteful, of course, were completely allowed, as long as they stayed within certain size and placement guidelines.
Oh, Larry. You poor, unfortunate soul. You had no idea what you’d just unleashed.
The very next morning, I went on the shopping spree of a lifetime. It was glorious. I bought gnomes. Not just any gnomes, though, giant ones. One was holding a lantern, another was fishing in a little fake pond I set up in the garden.
And an entire flock of pink, plastic flamingos. I clustered them together like they were planning some sort of tropical rebellion.
Then came the solar lights. I lined the walkway, the garden, and even hung a few in the trees. By the time I was done, my yard looked like a cross between a fairy tale and a Florida souvenir shop.
And the best part? Every single piece was perfectly HOA-compliant. Not a single rule was broken. I leaned back in my lawn chair, watching the sun set behind my masterpiece.
The twinkling lights came to life, casting a warm glow over my gnome army and the flamingo brigade. It was, in a word, glorious.
But Larry, oh Larry, was not going to take this lying down.
The first time he saw my yard, I knew I had him. I was watering the petunias when I spotted his car creeping down the street. His windows rolled down, his eyes narrowing as they scanned every inch of my lawn.
The way his jaw clenched, his fingers tight on the steering wheel — it was priceless. He slowed to a crawl, staring at the gnome with the margarita, lounging in his lawn chair like he didn’t have a care in the world.
I gave Larry a little wave, extra sweet, as if I didn’t know I’d just declared war.
He stared at me, his face turning the color of a sunburned tomato, and then, without a word, he sped off.
I let out a laugh so loud it startled a squirrel in the oak tree. “That’s right, Larry. You can’t touch this.”
For a few days, I thought maybe, just maybe, he’d let it go. Silly me. A week later, there he was again, stomping up to my door with that clipboard, wearing his HOA President badge like he’d been knighted.
“Mrs. Pearson,” he began, not even bothering with pleasantries, “I’ve come to inform you that your mailbox violates HOA standards.”
I blinked at him. “The mailbox?” I tilted my head toward it. “Larry, I just painted that thing two months ago. It’s pristine.”
He squinted at it like he’d found some imaginary flaw. “The paint is chipping,” he insisted, scribbling something on his clipboard.
I glanced at the mailbox again. Not a chip in sight. But I knew this wasn’t about the mailbox. This was personal.
“You’ve got a lot of nerve,” I muttered, crossing my arms. “All this over half an inch of grass?”
“I’m just enforcing the rules,” Larry said, but the look in his eyes told a different story.
I narrowed my eyes at him. “Sure, Larry. Whatever helps you sleep at night.”
He turned on his heel and strutted back to his car like he’d just delivered some life-altering decree. I watched him go, fury bubbling up inside me. Oh, he thought he could win this? Fine. Let the games begin.
That night, I hatched a plan. If Larry wanted a fight, he was going to get one. I spent the next morning back at the garden store, loading up on more gnomes, more flamingos, and just for fun, a motion-activated sprinkler system.
By the time I was done, my yard looked like a carnival of absurdity. Gnomes of all sizes stood proudly in formation, some fishing, some holding tiny shovels, and one, my new favorite, lounging in a hammock with a miniature beer in hand.
The flamingos? They’d formed their own pink plastic army, marching across the lawn with solar lights guiding their way.
But the pièce de résistance? The sprinkler system. Every time Larry came by to inspect my yard, the motion sensor would activate, spraying water in every direction. Totally by accident, of course.
The first time it happened, I nearly fell off the porch laughing.
Larry pulled up, clipboard ready, only to be met with a stream of water straight to the face. He spluttered, waving his arms like a drowning cat, and retreated to his car, soaked to the bone.
The look of pure outrage on his face was worth every penny I’d spent.
But the best part? The neighbors started to notice.
One by one, they began stopping by to compliment my “creative flair.”
Mrs. Johnson from three houses down said she loved the “whimsical” atmosphere. Mr. Thompson chuckled, saying he hadn’t seen Larry so flustered in years. And soon, it wasn’t just compliments. The neighbors started putting up their own lawn decorations.
It began with a few garden gnomes, but soon, flamingos popped up all over the cul-de-sac, twinkling lights appeared in every yard, and someone even set up a miniature windmill.
Larry couldn’t keep up.
His clipboard became a joke. The once-feared fines became a badge of honor among the residents, and the more he tried to tighten his grip, the more the neighborhood slipped through his fingers.
Every day, Larry had to drive past our gnomes, our flamingos, and our lights, knowing full well that we’d beaten him at his own game.
And me? I watched the chaos unfold with a smile on my face.
The whole neighborhood had come together, united by lawn ornaments and sheer spite. And Larry, poor Larry, was left powerless, just a man with a soggy clipboard and no authority to back it up.
So, Larry, if you’re reading this, keep on looking. I’ve got plenty more ideas where these came from.
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