Céline Dion Shares Raw Video of Stiff-Person Syndrome Crisis in Never-Seen Footage from New Documentary

In a devastating moment from “I Am: Céline Dion,” the famous person battles through an unexpected and horrifying SPS episode.

Fans are getting an unheard-of glimpse inside Céline Dion’s tribulations during the last few years of her life.

After being diagnosed with stiff-person syndrome in August 2022, the 56-year-old superstar tentatively but proudly returns to the recording studio in a devastating sequence towards the end of her new documentary, I Am: Céline Dion (available for streaming globally on Prime Video).

Shortly after, as part of her continuous treatment regimen, she makes her way to physical therapy and her foot starts to hurt.

Dion’s body locks up, indicating that she is in severe agony while her care team gives her a diazepam nasal spray during the SPS crisis episode. One of her teammates says, “We’ll do a 9-1-1 if she goes back into a spasm.”

In the movie, Dion subsequently remarks, “Every time something like this happens, it makes you feel so embarrassed.” “I’m not sure how to say it. You know that you dislike losing control of yourself?

The five-time Grammy winner thought back on the horrifying moment that director Irene Taylor’s crew captured on camera during her PEOPLE cover interview.

“Overstimulation—whether it be happiness, sadness, sound, or a surprise—can put me into a crisis—that’s one part of the [SPS] condition,” Dion explains, adding that she “did not see” the crisis episode coming that day. “Before something triggered, I was fine.”

Taylor’s understanding of the condition deepened when she was “two feet away” from Dion during the crisis.

Taylor remarks, “That was really amazing, not just for Céline to go through it, but for me to see as well.” “I continued to film because that is how I work, and I thought we would decide later whether or not to incorporate that into the movie.”

Dion and Taylor had developed a close relationship by the time the movie was in post-production, and according to Taylor, “I knew that putting it in the film was really not a risk because she believed in me at that point.” “I really can only thank her for that because she is an open book, was there, and didn’t hold anything back.”

Dion is attempting to humanize the uncommon illness through the movie and contribute to fund-raising efforts for scientific studies in the pursuit of a solution.

Neuropathy has a very broad spectrum. For this reason, I’m making a lot of effort to raise money so that people can speak with their husbands, friends, or neighbors about it,” Dion explains.

Adds Dr. Amanda Piquet, the doctor who diagnosed Dion and director of the University of Colorado Anschutz Medical Campus’s program on autoimmune neurology: “There are many exciting things in store for SPS, and the future looks bright.”

BREAKING: Kate Middleton Announces She Has Cancer

Tonight, the Princess of Wales shared in a heartfelt video message that at the age of 42, she has received a cancer diagnosis and is currently undergoing preventative chemotherapy. Filmed at Windsor on Wednesday, Catherine expressed the immense shock of this news, emphasizing that she and William have been diligently navigating this situation privately, prioritizing their young family’s well-being.

GEORGE ROGERS/SIPA/East News

Seated amidst daffodils and blossoming spring trees, she spoke earnestly, «This of course came as a huge shock, and William and I have been doing everything we can to process and manage this privately for the sake of our young family. As you can imagine, this has taken time. It has taken me time to recover from major surgery in order to start my treatment. But, most importantly, it has taken us time to explain everything to George, Charlotte and Louis in a way that is appropriate for them, and to reassure them that I am going to be ok.»

«As I have said to them; I am well and getting stronger every day by focusing on the things that will help me heal; in my mind, body and spirits. Having William by my side is a great source of comfort and reassurance, too. As is the love, support and kindness that has been shown by so many of you. It means so much to us both.»

George Rogers / SIPA / Sipa Press / East News

During her January abdominal surgery, Kensington Palace initially stated it was non-cancerous. They reiterated tonight that no tests had indicated cancer. However, subsequent post-operative tests revealed its presence. This evening’s revelation will undoubtedly reverberate globally, following weeks of speculation and unfounded conjecture about her health. It presents a new challenge for the British Royal Family, coinciding with King Charles’s own cancer battle.

The princess is currently following a recovery plan, having begun chemotherapy in late February. Consequently, Prince William withdrew from a memorial service honoring his late godfather, King Constantine of Greece. Kensington Palace has emphasized against speculation regarding the type of cancer.

© Doug Peters / Alamy Stock Photo

In her video statement, the Princess appeared casually attired in a striped Breton top paired with jeans. She said: «I wanted to take this opportunity to say thank you, personally, for all the wonderful messages of support and for your understanding whilst I have been recovering from surgery. It has been an incredibly tough couple of months for our entire family, but I’ve had a fantastic medical team who have taken great care of me, for which I am so grateful.»

«In January, I underwent major abdominal surgery in London and, at the time, it was thought that my condition was non-cancerous. The surgery was successful. However, tests after the operation found cancer had been present. My medical team therefore advised that I should undergo a course of preventative chemotherapy, and I am now in the early stages of that treatment.»

«We hope that you will understand that, as a family, we now need some time, space and privacy while I complete my treatment. My work has always brought me a deep sense of joy and I look forward to being back when I am able, but for now I must focus on making a full recovery.»

DANIEL LEAL/AFP/East News

Even amid her personal turmoil, she had a message of hope for others battling cancer. She went on, saying, «At this time, I am also thinking of all those whose lives have been affected by cancer. For everyone facing this disease, in whatever form, please do not lose faith or hope. You are not alone.»

We extend our well-wishes for a swift recovery to Catherine, Princess of Wales. Recently, the princess was seen in public for the first time since her surgery, accompanied by her mother. View her photo here.

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