The parents of a baby named Robyn, who was born very tiny at just 11 ounces (328 grams), have finally brought her home after 18 months in the hospital.
Robyn was born five months early in March 2023 at Grange Hospital in Cwmbran, Torfaen, and she still needs special care all the time. Her parents, Chantelle (34) and Daniel (38) from Malpas, Newport, are raising money for her treatment. Chantelle said, “It’s like a dream come true to have Robyn home.”
Robyn was born at just 23 weeks and 2 days and was so tiny that she could fit in the palm of a hand. To keep her organs warm while she grew, she was kept in a sandwich bag.
After six months in the hospital, she spent another seven months in the pediatric intensive care unit at Noah’s Ark Children’s Hospital in Cardiff. She then returned to Grange Hospital until she was finally discharged in September.
Chantelle, who works part-time as an accountant, said, “It’s just so nice to do normal family things… and just all be together under one roof.”
Daniel, a self-employed bricklayer, mentioned that it’s much less chaotic at home now. He has had to cut back on work to focus on taking care of his daughter.
Robyn gets oxygen and nutrition through tubes in her nose and mouth, and her vital signs are watched all the time. She takes 30 doses of medication each day.
Her mom, Chantelle, explained, “She can’t cough, so we have to suction her mouth and nose throughout the day when she needs it.”
Daniel described Robyn as doing well and enjoying the “peace” of being at home. He added that they do a lot of physical therapy and play with her to help her senses.
Chantelle said it was tough to bond with Robyn in the busy hospital ward, with doctors and nurses always coming in and out.
“All you can do is sit next to her and watch,” she explained, “keeping an eye on the numbers on the screen and hoping she will be okay.”
“When Robyn was born, we weren’t sure if she would survive.
“As time went on, she grew bigger and stronger, but she still faced many problems. It became clear that her brain damage would have a big impact on her.”
‘We know nothing is impossible’
“We didn’t learn about her brain damage until about six months after she was born,” Daniel said.
“You have all these plans for how life will be, and then everything changes,” he added.
“But we try to stay positive.
“We know that nothing is impossible for Robyn because she has been told so many times that she wouldn’t be able to do things or even survive, but she keeps proving everyone wrong.
“She’s full of surprises, and I believe she will create her own story.”
Parents were really surprised when their baby was born with a big smile on its face.
Ayla Summer Mucha startled her parents by beaming brightly when she was born in December 2021. Her parents fell in love with her right away, despite their first confusion due to an unusual illness that caused her smile to be permanent. Ayla is now well-known on social media, and her charming smile is adored by people everywhere.On December 30, 2021, Cristina Vercher and her husband Blaize Mucha were eager to finally see their newborn girl after nine months of waiting. However, unexpected news was delivered by the doctors during the C-section delivery.Due to bilateral macrostomia, Ayla Summer Mucha’s mouth did not form normally from birth.When a baby is growing inside its mother, the corners of the mouth sometimes don’t meet correctly, a condition known as a facial cleft. Just 14 cases similar to it have been documented in medical books due to its extreme rarity.Because the ultrasounds revealed no issues, Ayla’s parents were unaware of this until after she was born. They became really concerned when they noticed that she was speaking with her mouth agape. Even though Ayla was so small, the problem was evident, which startled and worried Ayla’s parents, who are now 23 and 22 respectively.”I had never met anyone born with a macrostomia, and neither Blaize nor I knew about this condition,” Adelaide’s Vercher remarked. Thus, it came as a huge surprise.Not just the parents expressed surprise.
A baby with bilateral macrostomia was beyond the capabilities of even the medical professionals.The fact that it took hours for a doctor to respond to our questions made it much more concerning. She added that the hospital was also ignorant of this uncommon ailment. “As a mother, all I could focus on was my mistakes.”However, medical professionals informed the anxious parents that there was nothing more they could have done. Cristina was concerned that she might have erred during her pregnancy or contributed to her daughter’s illness.She remarked, “I couldn’t stop wondering where I might have made a mistake as a mother.” They were convinced, nevertheless, that they had no influence over this problem and that they were not to blame following days of genetic testing and scans.The Mucha family concentrated on assisting Ayla in managing her illness, which limits her food and drink options, comfortably. Babies with this illness occasionally require surgery to become better.Ayla’s parents posted her story on social media so that people may learn more about it. Around 6.5 million users enjoyed Ayla’s adorable smile on TikTok. The amount of support that the Muchas received shocked them.”I just looked it up, and there are only 14 cases like hers that are known,” a commenter said. She is truly unique. Mom, you ought to feel proud.Regarding Ayla’s smile, another internet user stated, “She is gorgeous and just perfect the way she is.” Her smile made me smile as well.But nasty things about Ayla were said by several people online. But Ayla’s supporters swiftly came to her aid.”Your daughter is stunningly gorgeous. Never pay attention to such nasty folks. One individual remarked, “She’s like an angel.” Someone else posted, “Oh my gosh! You’re quite adorable! Pay no attention to their hurtful remarks. You’re simply too cute.”You’re a strong mom, and your daughter is beautiful,” commented another commenter. I apologize for exposing you to those hurtful remarks.Vercher said, “I think it’s important to be kind and accept everyone, no matter what,” to the hurtful remarks made about her child.If she and her child were in a similar circumstance, she hoped that people would treat them with the same respect. Vercher said that anyone could experience similar circumstances. She added that since you have no control over what other people say on social media, it can be a difficult place.Vercher ignored the criticism in favor of highlighting the encouragement and kind remarks. “We’re really proud of ourselves, so we won’t stop sharing our experiences and favorite memories,” she remarked.
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