The human body’s ability to adapt and overcome challenges is truly remarkable. Tessa Evans, born on Valentine’s Day in 2013, exemplifies this resilience. Diagnosed with Bosma arhinia microphthalmia syndrome—a rare genetic condition—Tessa has not only become a symbol of medical advancement but also a beacon of hope and inspiration.
Understanding a Rare Genetic Condition
Bosma arhinia microphthalmia syndrome affects the development of the nose, eyes, and puberty, and can also influence brain structure. With fewer than 100 documented cases worldwide, the condition is exceptionally rare. First identified in Vietnam in 1981, evidence suggests its existence may date back even further. Tessa Evans is one of the few individuals living with this condition, representing a unique story of courage and progress.
A Trailblazing Journey
Tessa’s parents, Grainne and Nathan Evans from Maghera, Northern Ireland, were unprepared for the diagnosis, as no abnormalities were detected during pregnancy. Despite the shock, the couple embraced their daughter’s uniqueness and embarked on a mission to enhance her quality of life through groundbreaking medical treatments.
Groundbreaking Treatments
At just two weeks old, Tessa underwent her first surgery to receive a tracheostomy tube, enabling her to breathe and eat more easily. By the age of two, she made history as the youngest patient to receive a cosmetic nasal implant. Utilizing advanced technologies such as 3D printing and medical tattooing, doctors are working to create a permanent nasal structure for Tessa as she grows. These innovations are designed to reduce the need for future surgeries and provide her with a more natural profile.
Challenges Beyond Appearance
Living without a sense of smell presents unique safety challenges for Tessa. Without this critical sensory warning system, she is more vulnerable to dangers like fires or spoiled food. Her parents remain vigilant, ensuring her safety and emphasizing the importance of raising awareness about her condition.
Inspiring Change and Progress
Tessa’s courage and her family’s determination have sparked hope for others facing similar diagnoses. Her groundbreaking treatments have inspired another child in the UK to pursue similar procedures. Described as “charming” and “fearlessly courageous,” Tessa continues to challenge perceptions and drive innovation in medical science. Her family’s Facebook page, Tessa; Born Extraordinary, documents her incredible journey, inspiring nearly 10,000 followers.
A Legacy of Resilience
Tessa Evans’ story is one of love, resilience, and medical breakthroughs. Despite the extraordinary challenges posed by her rare condition, she exemplifies what is possible with determination and the support of a dedicated family. Tessa’s journey is not only reshaping lives but also redefining the boundaries of medical science.
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So I am at Walmart scanning and bagging my almost $300 worth of groceries while the employee that wants $15 an hour “monitors” and then this happened.
So I am at Walmart scanning and bagging my almost $300
So I am at Walmart scanning and bagging my almost $300 worth of groceries while the employee that wants $15 an hour “monitors” and then this happened.
Her – why are you double bagging all of your groceries?
Me – excuse me?
Her – you are wasting our bags!
Me – if you don’t like the way I’m bagging the groceries, feel free to come on over here and bag them yourself.
Her – that’s not my job!
Me – okay, then I will bag my groceries how I please if that’s all right with you.
Her – why are you using two bags?!
Me – because the bags are weak and I don’t want the handles to break or the bottoms to rip out.
Her – well that’s because you are putting too much stuff in the bag. If you took half of that stuff out and put it in a different bag then you wouldn’t need to double bag.
*10 seconds of me just staring at her.
Me – so you want me to split these items in half and put half of them in a different bag so that I don’t have to double bag.
Her – exactly.
Me – so I would still be using two bags to hold the same number of items.
Her – no because you wouldn’t be double bagging.
*me pressing two fingers to my left eye in an attempt to make it stop twitching.
Me – okay so here I have a jug of milk and a bottle of juice double bagged. If I take the milk out and remove the double bagging and just put the milk in the single bag and the juice in that single bag I’m still using two bags for these two items.
Her- no because you are not double bagging them so it’s not the same number of bags.
*me looking around at about 10 other customers who at this point are enjoying the show.
Me- is this like that Common Core math stuff I keep hearing about?
Her- never mind you just don’t get it.
And with that, she went back to her little Podium so she could continue texting or playing games on her phone or whatever it was she was doing before she decided to come over and critique my bagging skills.
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