Woman with rare skin condition overcomes negativity and finds true love

Thanks to the rise of social media, we’re all bombarded with images of seemingly perfect-looking people; it seems as though the world has become even more shallow in how people are judged.

For those of us that don’t fit the stereotypical “perfect” mold, the world can seem very cruel, with complete strangers feeling it necessary to criticize someone based on their appearance on social media.

Karine de Souza knows this more than anyone. The Brazilian has spent her life covering her skin in SPF100 sunscreens – even when she’s inside her home – due to her rare skin condition.

The 33-year-old was diagnosed with Xeroderma Pigmentosum when she was three years old which means she is at high risk of skin cancer.

Her ”one-in-a-million” condition, which is incurable, means she is highly sensitive to UV rays as she lacks the ability to repair any damage the sun causes to her skin.

Just a few minutes in the sun can mean incredibly painful sunburn for her. Growing up, she was often isolated from the outside world because it was too dangerous for her to spend too much time outside her house.

“When I expose myself to the sun it doesn’t happen in the moment, I don’t feel anything. However, in the future, the lesions appear and need to be removed because of cancer,” she said.

Karine has had to endure 130 surgical procedures to remove lesions caused by the sun, including the removal of her lower lip and part of her nose.

Sadly, it is not only a physical battle she has to endure. Karine often gets stared at in the street and has been the victim of verbal abuse both within her community and online.

But despite her suffering, she remains upbeat and happy and has even found love.

She met her husband Edmilson through social media, who fell in love with her “story and her strength.” Edmilson has always stood by Karine’s side, and he knew he wanted to spend the rest of his life with her.

He also decided to embrace Karine’s three children from her previous relationship, which of course, meant a lot to Karine.

”He came and he showed me that I could live a true love story”, she says.

But after posting photos of them together online, Karine was once again exposed to a whole host of offensive comments.

”We have already read many offensive comments calling me a monster, deformed, a zombie,” Karine said.

Other comments suggested that their relationship wasn’t genuine and that Karine was a ”sugar mommy,” and that she must be very rich.

”Because of the fact he’s a young man and pretty, that caught people’s attention and they didn’t believe that he was with me because he really liked me,” Karine said.

A photographer who captured the couple after they got engaged posted a selection of the images online and wrote:

”In a world where appearance matters more than the feeling, they met not by chance, but by a gathering of souls, an encounter of acceptance and character and love emerged when their souls met and today you are the inspiration to so many people who do not believe in themselves, in life and especially in love.

“THANK YOU every day for being who you are. STOP complaining for being like you are. HUG LIFE, and accept yourself. Much gratitude for teaching me so much. You guys are AMAZING. You are the missing hope in so many people. Thank you for the big hug, and for the wonderful day we experienced together. I carry your smile with me forever.”

His heartfelt words and beautiful images he captured of Karine and Edmilson went viral, and thousands of people commented, congratulating the couple.

Karine wants others to realize the importance of being positive.

”Be happy, smile, because life happens only once,” she said.

In 2023, Karine and Edmílson welcomed a baby girl into the world, and they couldn’t be happier! Their daughter, Zaia, was long awaited – Karine and her husband had been trying for a baby since 2020.

Karine has been through so much but thanks to her positive attitude she has found the happiness she deserves.

Her story is inspirational so help us inspire others in similar situations by sharing this story with your friends and family.

My Husband Died in an Accident, but I Never Saw His Body — One Day, I Heard His Voice Coming from Our Little Daughter’s Bedroom

Grief plays tricks on the mind, but this? This was real. Kelly knew her husband’s voice, and she’d just heard it… coming from her daughter’s room. A chill ran down her spine. Jeremy had been dead for two years. So who — or what — was speaking in his voice? Then she stepped inside… and FROZE.

I’m Kelly. I’m 30, and my life has been a rollercoaster of love and loss. My husband, Jeremy, died in a car accident two years ago. I was eight months pregnant with our daughter, Sophia. One moment, I was painting flowers on the walls of her nursery, dreaming about our future. The next, I was getting a phone call that shattered my world.

A pregnant woman looking at her phone | Source: Pexels

A pregnant woman looking at her phone | Source: Pexels

I remember that moment like it was yesterday. The paintbrush slipped from my fingers, leaving a trail of pink down the wall.

“Miss Kelly?” the voice on the phone was gentle, practiced. “This is Officer Reynolds…”

“Yes?” My hand instinctively went to my swollen belly. Sophia kicked, as if sensing my fear.

“There’s been an accident. Your husband…”

“No,” I whispered. “No, please…”

A startled woman talking on the phone | Source: Midjourney

A startled woman talking on the phone | Source: Midjourney

They told me the crash was bad — so bad that I shouldn’t see his body. I never got to say goodbye. Just a closed casket at the funeral, and that was it.

“Kelly, honey,” my mom had said at the funeral, holding me as I sobbed. “You need to stay strong. For the baby.”

“How?” I choked out. “How am I supposed to do this without him? He was supposed to be here. He was supposed to hold her…”

Men carrying a coffin | Source: Pexels

Men carrying a coffin | Source: Pexels

Two years later, I was doing my best to keep going, to be strong for Sophia. But the emptiness? It never really left.

And then, two days ago, something happened that made me question everything.

It was just a regular afternoon. I had put Sophia down for her nap in her bedroom and curled up on the couch with a book. The house was quiet. Peaceful.

Until I heard it.

The sound of a window shutting. Not loud — just enough to make me glance up. Probably the wind, I thought. But then, my blood ran cold when I… Oh my God… when I heard JEREMY’S VOICE:

“I love you forever.”

I swear to God, my whole body turned to ice.

It wasn’t a muffled memory in my head. It wasn’t wishful thinking. It was CLEAR AS DAY.

A terrified woman | Source: Midjourney

A terrified woman | Source: Midjourney

I sat frozen, my breath caught in my throat. My ears were ringing. My heart pounded so hard I thought I might pass out.

“Jeremy?” I whispered into the silence, my voice trembling. “Baby, is that you?”

No. No, no, no. Jeremy was gone. This was NOT POSSIBLE.

But I heard it. Again.

“I love you forever.”

It was coming from Sophia’s room.

A frantic woman standing at the doorway | Source: Midjourney

A frantic woman standing at the doorway | Source: Midjourney

I shot up so fast the book tumbled off my lap. My mind raced with possibilities — was someone in there? Was I hallucinating?

Was Jeremy ALIVE?

I rushed down the hallway, barely feeling my feet hit the floor. My hands were ice-cold, and my stomach churned like I might throw up.

“Please,” I whispered as I ran, tears already forming. “Please, if you’re there…”

I pushed open Sophia’s door.

A terrified woman walking into a room | Source: Midjourney

A terrified woman walking into a room | Source: Midjourney

She was sound asleep in her crib, curled up in a little ball, her tiny fingers clutching a teddy bear. The room was just as I had left it. No open windows. No shadows in the corner. Nothing.

But then, I heard it again.

“I love you forever.”

I swore my heart stopped.

“Jeremy?” My voice cracked. “Is this some kind of cruel joke? Please… I can’t… I can’t take this…”

I scanned the room, my hands shaking as I moved toward the window. Something had to explain this.

A little girl fast asleep while holding a teddy bear | Source: Midjourney

A little girl fast asleep while holding a teddy bear | Source: Midjourney

My fingers brushed against the glass. It was shut. Locked. Outside, a small tree branch rested against the pane, broken like it had fallen against it.

Okay. That explained the noise. But Jeremy’s voice?

My eyes darted back to Sophia. She stirred in her sleep, hugging the bear tighter.

“Dada,” she murmured in her sleep, and my heart shattered all over again.

And then it hit me.

The bear.

I dropped to my knees beside her crib, hands trembling as I reached for it. Pressed it.

“I love you forever.”

My chest squeezed so tight I thought I might collapse.

A startled woman holding a teddy bear | Source: Midjourney

A startled woman holding a teddy bear | Source: Midjourney

Jeremy’s voice… It was coming from the bear.

“Oh God,” I sobbed, clutching the bear to my chest. “Oh God, Jeremy…”

I sat on the couch, staring at the bear like it might come to life.

I had no memory of buying this. Had someone given it to Sophia?

And then I remembered. A week ago, we had celebrated Sophia’s second birthday. My mother-in-law, Gloria, had given her this bear.

A little girl celebrating her 2nd birthday | Source: Pexels

A little girl celebrating her 2nd birthday | Source: Pexels

“Look what Grandma got you!” I had said, trying to sound cheerful despite the ache in my chest. Another birthday without Jeremy.

I had barely looked at it at the time. It was just another stuffed animal.

But now? Now I needed answers. So I called Gloria.

She picked up on the second ring. “Kelly, hi, sweetie! Everything okay?”

An older woman holding her phone | Source: Midjourney

An older woman holding her phone | Source: Midjourney

I gripped the bear tighter. “Did you know this thing plays Jeremy’s voice?”

Silence.

Then, a quiet, almost hesitant, “Oh… did it finally play?”

My stomach twisted. “Finally? What do you mean FINALLY?”

Gloria sighed. “I was wondering when you’d hear it.”

I sat up straighter. “Gloria. What did you do?”

A woman talking on the phone | Source: Midjourney

A woman talking on the phone | Source: Midjourney

“Kelly, please,” her voice wavered. “Just let me explain…”

“Explain what?” I demanded, my voice rising. “Explain why you thought it was okay to… to…”

I couldn’t even finish the sentence.

Gloria showed up an hour later, looking almost nervous. She sat across from me, hands folded, eyes scanning my face.

“I just… I thought it would help,” she said softly.

I placed the bear between us. “Help who?”

Two women talking to each other | Source: Midjourney

Two women talking to each other | Source: Midjourney

She exhaled. “Sophia. And you.”

I stared at her.

“Kelly,” she reached across the table, taking my hand. “Every time Sophia asks about her daddy… every time I see you trying to explain… it breaks my heart.”

“And you don’t think this breaks mine?” My voice cracked. “To hear his voice again, out of nowhere?”

Gloria swallowed. “After Jeremy died, I kept thinking about how Sophia would never know her dad’s voice. So I took a recording from your wedding video. You remember his vows?”

My throat closed.

“‘I love you forever,'” she whispered.

Oh my God.

A woman overwhelmed with emotions | Source: Midjourney

A woman overwhelmed with emotions | Source: Midjourney

“I remember,” I choked out. “He… he practiced those vows for weeks. Said he had to get them perfect…”

She clasped her hands together. “I had it sewn into the bear before her birthday. I wanted her to have a piece of him. To know he’s always with her.”

I blinked hard, staring at the table, my mind spinning.

She had meant well. I knew that. But I felt so blindsided.

“Gloria,” I said, my voice barely above a whisper. “You should have told me.”

“I know,” she admitted with a fragile smile. “I just… I didn’t want to upset you.”

An older woman smiling | Source: Midjourney

An older woman smiling | Source: Midjourney

“Upset me?” I laughed bitterly. “I thought I was going crazy. I thought… for a moment, I thought he was…”

“Alive?” Gloria finished softly. “Oh, sweetheart…”

She moved around the table, pulling me into her arms as I broke down.

“I miss him so much,” I sobbed. “Every single day…”

“I know,” she stroked my hair. “He would be so proud of you, Kelly. So proud of how you’re raising Sophia.”

I didn’t know what to say.

I wasn’t angry. I wasn’t relieved. I was just… overwhelmed.

A distressed woman | Source: Midjourney

A distressed woman | Source: Midjourney

That night, I sat in Sophia’s room, watching her sleep. The bear was in my lap. My fingers traced the soft fabric as I stared at my little girl — the daughter Jeremy never got to meet.

She looked so much like him. The same curve to her nose, the same dimple when she smiled, and the same sparkling blue eyes.

“You would have loved her so much,” I whispered into the darkness. “She’s perfect, Jeremy. Just perfect.”

I pressed the bear one last time as a familiar voice filled the room and my heart:

“I love you forever.”

A lump formed in my throat. I wiped my eyes quickly, swallowing down the ache.

I missed him.

A heartbroken woman holding a teddy bear | Source: Midjourney

A heartbroken woman holding a teddy bear | Source: Midjourney

Sophia stirred, her eyes fluttering open. “Mama?”

“Hey, baby girl,” I whispered, reaching to stroke her cheek.

“Bear?” She reached for the teddy.

I handed it to her, watching as she pressed it to her chest. Jeremy’s voice filled the room again.

“That’s your daddy,” I told her, my voice thick with tears. “He loves you so, so much.”

A cheerful little girl holding a teddy bear | Source: Midjourney

A cheerful little girl holding a teddy bear | Source: Midjourney

“Dada?” She looked at the bear with wide eyes, then back at me.

“Yes, sweetheart. That’s Dada.”

She hugged the bear tighter, closing her eyes. “Love Dada.”

And for so long, I thought I had lost everything. But here, in my daughter’s arms, was a piece of him.

I leaned down and kissed Sophia’s forehead.

“You’ll always have him with you, my sweet girl,” I whispered. “Always.”

The grief was still there. It always would be.

But for the first time in a long, long time… I didn’t feel so alone.

A grieving woman holding herself together | Source: Midjourney

A grieving woman holding herself together | Source: Midjourney

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