Those nine months a mom carries her baby are filled with joy, anticipation, and a dose of uncertainty. What the new parents hope for is their bundle of joy to be healthy. Sadly, that is not always the case.
Jennie Wilklow, from Highland, New York, couldn’t wait to meet her daughter. She and her husband were over the moon to hold her in their arms. All the ultrasounds and doctor’s appointment suggested the baby was healthy, so they were eased and never thought sweet Anna would be born with a condition that would change all of their lives forever.
Jennie delivered Anna via C-section at 34 weeks. Doctors told her she looked beautiful and that was all Jennie needed to hear at that point.
Shortly after, the proud mom heard her daughter cry, and that was just another sign that everything was right with her little jewel.
When her husband visited Jennie, he was strangely silent and looked worried and puzzled.
“My husband’s silence scared me; he just sat in shock as the doctor left, and I prodded for more info,” Jennie shared with Cafe Mom.
“He just kept saying, ‘It’s bad.’ What does that even mean? I thought in my head. He told me, ‘Jennie, I looked in her eyes, and she has the most beautiful soul.’”
Anna was diagnosed with harlequin ichthyosis, a rare condition that causes thick diamond-shaped plates that are separated by deep cracks. “As they tried frantically to help her, her skin hardened within seconds (of birth). After hardening, it began to split, causing open wounds all over her body,” Jennie told Cafe Mom.
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Although doctors weren’t sure she would survive, Anna beat the odds and is thriving. “She was beauty in the purest form,” her mom said.
There isn’t cure, and the treatment is quite demanding as it requires constant baths and keeping the skin as much moisturized as possible. “Every couple of hours I covered her with Vaseline and bathed her for many hours of the day. I had dreamed for years about the things my baby would wear, and though it seemed so trivial, it was what I struggled with most,” Jennie said.
In an attempt to raise awareness about this condition, Jennie posts photos of Anna on her Instagram page harlequindiva. She opens up about the everyday struggles and what it is like to have a child with harlequin ichthyosis.
“Anna captured everyone’s hearts because she is the purest form of perfection. Doing the work every day is simple when I’m doing it for her, and with every new accomplishment, the world celebrates with me,” Jennie told Cafe Mom.
She adds, “I now understand that I was given her because of the love I already carried in my heart for my daughter. Anna was meant for me, and I for her, and together we will show the world what true beauty is.”
This boy lost his famous dad at 16 – now, he’s a proud gay man and father
The esteemed American actor Michael Landon passed away at the age of 54, leaving behind a legacy marked by his iconic roles in Bonanza, Little House on the Prairie, and Highway to Heaven.
Despite his storied Hollywood career, Landon always placed his family at the forefront of his life.
He was a father to nine children and had the joy of meeting some of his grandchildren before his untimely death.
Diagnosed with pancreatic cancer, Landon faced his illness with remarkable bravery. He dedicated himself to various treatments, including chemotherapy and natural remedies, and adopted a largely vegetarian diet in hopes of recovery. Tragically, he succumbed to the disease just three months after his diagnosis.
By Father’s Day in 1990, the severity of his condition was unmistakable. On June 16, Landon confided in his wife, Cindy, that he was nearing the end. She witnessed his struggle firsthand that day as he tried to move around the house with the aid of an oxygen tank.
As the end approached, a nurse warned Landon’s family that his death was imminent, prompting Cindy to ensure that all of Landon’s children had the opportunity to say their goodbyes. Each of his children, with their individual personalities and life paths, faced the loss in their unique ways.
Christopher, one of his sons, was only sixteen when Landon passed away. A year later, Christopher opened up about his grief and the impact of losing his father at such a young age.
Christopher recalled the day he learned of his father’s terminal illness and his emotional state before receiving the devastating news. He had been feeling upbeat after acing an English exam, only to be informed later by his sisters about their father’s diagnosis. Reflecting on the moment he received the news, Christopher said (via People): “I could feel every nerve in my body like it was all made up.”
Seven months after his father’s death, Christopher began to talk about his grief more openly. His mother, stepmother, and siblings shared in this process of healing. Christopher regretted not being able to apologize to his father for the hardships he endured. Michael’s final words to Cindy were simply, “I love you.”
Christopher noted the shift in his perception of death since his father’s passing: “Before, when I used to think about death, I’d say, ‘I don’t want to die at all!’ But now I’d say the worst that’s going to happen is that I’ll see Dad again,” per People.
In the wake of his father’s death, Christopher vowed to live life to its fullest and to honor his father’s memory by living authentically. At 24, this commitment meant coming out about his sexuality.
Despite the fame of his father and the challenges of high school, Christopher grappled with his identity and feared judgment. He once worried that his coming out might negatively impact his father’s wholesome image, thinking: “For a while, I thought an article about me would come out with the headline ‘Little House on the Fairy’ or ‘Highway to Hell.’”
Seven months after his father’s death, Christopher began to talk about his grief more openly. His mother, stepmother, and siblings shared in this process of healing. Christopher regretted not being able to apologize to his father for the hardships he endured. Michael’s final words to Cindy were simply, “I love you.”
Christopher noted the shift in his perception of death since his father’s passing: “Before, when I used to think about death, I’d say, ‘I don’t want to die at all!’ But now I’d say the worst that’s going to happen is that I’ll see Dad again,” per People.
In the wake of his father’s death, Christopher vowed to live life to its fullest and to honor his father’s memory by living authentically. At 24, this commitment meant coming out about his sexuality.
Despite the fame of his father and the challenges of high school, Christopher grappled with his identity and feared judgment. He once worried that his coming out might negatively impact his father’s wholesome image, thinking: “For a while, I thought an article about me would come out with the headline ‘Little House on the Fairy’ or ‘Highway to Hell.’”
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