Those nine months a mom carries her baby are filled with joy, anticipation, and a dose of uncertainty. What the new parents hope for is their bundle of joy to be healthy. Sadly, that is not always the case.
Jennie Wilklow, from Highland, New York, couldn’t wait to meet her daughter. She and her husband were over the moon to hold her in their arms. All the ultrasounds and doctor’s appointment suggested the baby was healthy, so they were eased and never thought sweet Anna would be born with a condition that would change all of their lives forever.
Jennie delivered Anna via C-section at 34 weeks. Doctors told her she looked beautiful and that was all Jennie needed to hear at that point.
Shortly after, the proud mom heard her daughter cry, and that was just another sign that everything was right with her little jewel.
When her husband visited Jennie, he was strangely silent and looked worried and puzzled.
“My husband’s silence scared me; he just sat in shock as the doctor left, and I prodded for more info,” Jennie shared with Cafe Mom.
“He just kept saying, ‘It’s bad.’ What does that even mean? I thought in my head. He told me, ‘Jennie, I looked in her eyes, and she has the most beautiful soul.’”
Anna was diagnosed with harlequin ichthyosis, a rare condition that causes thick diamond-shaped plates that are separated by deep cracks. “As they tried frantically to help her, her skin hardened within seconds (of birth). After hardening, it began to split, causing open wounds all over her body,” Jennie told Cafe Mom.
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Although doctors weren’t sure she would survive, Anna beat the odds and is thriving. “She was beauty in the purest form,” her mom said.
There isn’t cure, and the treatment is quite demanding as it requires constant baths and keeping the skin as much moisturized as possible. “Every couple of hours I covered her with Vaseline and bathed her for many hours of the day. I had dreamed for years about the things my baby would wear, and though it seemed so trivial, it was what I struggled with most,” Jennie said.
In an attempt to raise awareness about this condition, Jennie posts photos of Anna on her Instagram page harlequindiva. She opens up about the everyday struggles and what it is like to have a child with harlequin ichthyosis.
“Anna captured everyone’s hearts because she is the purest form of perfection. Doing the work every day is simple when I’m doing it for her, and with every new accomplishment, the world celebrates with me,” Jennie told Cafe Mom.
She adds, “I now understand that I was given her because of the love I already carried in my heart for my daughter. Anna was meant for me, and I for her, and together we will show the world what true beauty is.”
Billy Connolly shared his thoughts about Robin Williams’ devastating farewell remarks ten years after the actor’s untimely death
The fact that the legendary Robin Williams died ten years ago is astounding. The late actor was a titan of the film business, a hilarious actor with almost no competition, whose death left a lasting impact on society. His death was undoubtedly the result of unfortunate circumstances, and his legacy continues to be profound.
That people are still talking about his life and legacy and that many of them conjecture about what may have occurred if his fortune and destiny had turned out differently should not come as a surprise.
The last words William ever said to him were relayed by Billy Connolly, a comedian and close friend of the actor, over ten years after the untimely death of the Good Will Hunting star. and they’re exactly as heartwarming as you might anticipate… It’s true that humor and Robin Williams go hand in hand.
Throughout his colorful career, Williams became one of the funniest men to have ever graced our screens. Ten years after his death, people are still laughing at the comedy he created, which combines gut-busting hilarity with strange, wonderful, flawed, and fabulous characters.
However, tragedy also plagued Williams’ life in this instance, to the extent that the actor believed life was not worth living at all. On August 11, 2014, Williams, 63, was found dead at home; it appeared that he had committed suicide.
Williams had issues like alcoholism despite enjoying great success in his acting career. In 2014, Williams spent three weeks at the Hazelden facility in Minnesota in an effort to deepen his commitment to recovery.
According to reports, the Jumanji actor battled alcoholism and cocaine abuse in the early 1980s until giving up when his pal John Belushi passed away from an overdose in 1982. Following his passing in 2014, the late Hollywood icon’s representative stated that he had been “battling severe depression.” His wife Susan Schneider subsequently revealed further information on his demise, including the fact that he had only been diagnosed with Parkinson’s disease a few months before he passed away.
Williams had Lewy body dementia (LBD), which resulted in significant alterations to his personality, mobility, temperament, memory, reasoning, sleep patterns, and mood, according to the results of an autopsy.
Needless to say, Williams’ passing had a terrible effect on a lot of people, including his closest friends and family.
One figure who definitely belonged in the first category was Sir Billy Connolly, who has been diagnosed with Parkinson’s disease. When asked what he would have done differently if he had known Williams intended to commit suicide, the comedian and actor said, “You have to give a guy the position that he’s wise enough to make up his own mind.” Connolly stated, “I don’t think so,” in response to the topic of whether or not he would have tried to save his own life.
The 81-year-old Connolly also revealed that he and Williams had talked on the phone a lot about their experiences with Parkinson’s disease and would often express how much they loved and cared for each other. When Connolly appeared on the BBC program In My Own Words, he discussed his relationship with Williams.
The week before Williams passed suddenly, he said, the actor had called to ask him to dinner. “I love you,” he remarked to me over dinner when he called and said, “Let’s have dinner.” Connolly thought back to their last dinner together. I conveyed my appreciation. He said, “Do you believe me?” “Obviously, I do,” I remarked. “You have my undying love,” he declared. That was great, in my opinion.
My initial thought was, “How strange, how strange for him to say that, it’s not like him normally.” Connolly said, “He died during the weekend. I hope you find peace, Robin Williams.
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