Throughout the nine months of pregnancy, a mother’s heart is filled with anticipation, excitement, and a hint of doubt. When an expecting parent gives birth, they all want the child to be healthy and happy. Regretfully, our expectations are not always met by the way things work out.
Jennie Wilklow, of Highland, New York, was looking forward to meeting her daughter. Jennie and her spouse were overcome with happiness the moment they held their baby.
After multiple ultrasounds and check-ups with the physician, the results consistently showed a healthy baby.
This assurance put their minds at rest, and they had no idea that their darling Anna would be born with a disease that would permanently alter their lives.
At 34 weeks, Jennie had a C-section to deliver Anna. She peered into Anna’s eyes when the physicians placed the baby in her arms and felt an overwhelming sense of love.
Everything was going fine with their cute little one. However, Jennie couldn’t help but feel apprehensive about her husband when he came to visit her.
Jennie told Cafe Mom, “My husband’s silence scared me.” I pressed him for additional information as the doctor was leaving the room, and he just sat there looking shocked. With remorse, he added, “It’s bad.”
Upon meeting her gaze, her spouse said, “Jennie, she has the most beautiful soul.” Jennie did not know what such terms meant at the moment. Her mind was racing, but she had no idea what was wrong.
Anna suffered from an uncommon disease known as harlequin ichthyosis, which showed up as thick, severely fractured diamond-shaped plates. Jennie said to Cafe Mom shortly after giving birth, “Her delicate skin hardened as they desperately tried to help her.”
The dramatic splitting that followed the hardening left her slathered in open wounds throughout her body.”Anna prevailed despite the physicians’ concerns about her prognosis. She was quite beautiful,” Jennie proudly declared.
Unfortunately, there is no known cure for harlequin ichthyosis. The treatment involves regular showering and thorough skin moisturization, which takes consistent effort. I used to bathe her for hours every few hours, slathering her in Vaseline.
It might not seem like much, but it was one of the things I struggled with the most. I had visualized all the amazing clothes my child would have,” Jennie said.
She set up the “harlequin diva” Instagram page and started posting images of Anna there in an effort to raise awareness of this illness. Through her articles, she sheds light on the challenges faced by parents of children with harlequin ichthyosis on a daily basis.
“Anna won many people’s hearts and is the pinnacle of perfection in its purest form.” She has a natural capacity to carry out these mundane tasks. The world celebrates with us every time we achieve a new milestone, Jennie said to Cafe Mom.She went on, “I now realize that my love for my daughter is the reason Anna was given to me.” Because we were destined to be together, we will work together to redefine what true beauty means to the world.
In addition to being beautiful in her own right, Anna is fortunate to have parents who will stop at nothing to ensure that she has a happy existence.
Let’s help spread the news about Anna’s story by inviting our friends and family to read this article on Facebook. Despite our differences, we can work together to raise awareness of and respect for the incredible beauty and power that each individual holds.
‘Relationship Expert’ Wants Parents To Get Baby’s Consent Before Changing A Nappy
If there is one thing we are certain of in life, it’s the fact that people have an opinion. Some will even try to voice that opinion as loud as possible, despite the fact that very few people are listening.
The Internet really makes it easy for anyone to have such an opinion and to voice it for the world to hear. The funny thing is that the stranger the opinion, the more press it seems to receive.
That is what one expert is now experiencing, thanks to their unusual recommendation for parents. They are a self-proclaimed relationship expert, and they said that parents should ask for permission before changing a diaper.
We realize that there are a lot of issues revolving around consent these days, and it can be difficult to navigate them. As far as many parents are concerned, however, asking a baby’s permission before changing a dirty diaper is just out of the question.
To be honest, most parents are not very happy about the fact that they have to change diapers but it is a necessity if you are going to raise your children happy and healthy. Adding the extra layer of having to ask permission before doing so is above and beyond.
The woman who made this claim says that she is a ‘sexuality educator, speaker, and author.’ Her name is Deanne Carson and her unusual recommendation for parents is making waves.
She was on ABC in 2018 to share these insights. She said that this is typically done with children above the age of three but she also feels that consent is important to introduce at a much younger age.
She does admit that babies will not be able to verbally respond to the request for consent, but they should be able to give nonverbal communication with eye contact and in other forms.
She claims that it’s about setting up a culture of consent in the home, and asking if it is okay to change the nappy before doing so.
Carson went further to explain the process, saying that allowing a moment for anticipation and waiting for any nonverbal cues can help parents and toddlers communicate on a deeper level.
Perhaps the most interesting thing was the way the reporters reacted to the suggestion. Not only were they very verbal, but they were also wondering what would happen if the baby said no.
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