Celine Dion is giving fans an honest look at her life with stiff person syndrome.
In a new documentary, the famous singer experiences a scary medical crisis during a physical therapy session, and it’s all caught on camera.
In 2022, Dion revealed she had been diagnosed with stiff person syndrome. In the documentary, “I Am: Celine Dion,” she shares that she had been dealing with symptoms of this rare, progressive neurological disorder for 17 years.
“I need my instrument. And my instrument was not working. So we started to elevate the medicine,” Dion, 56, said after struggling to hit certain notes during her 2018 and 2019 tours.
Though she completed her 2018 tour, Dion had to postpone several dates from her 2019 tour due to the “common cold” before the pandemic shut it down.
Her tour resumed in 2022, but she had to keep canceling and rescheduling shows. It wasn’t until she announced her diagnosis that she officially canceled the rest of her appearances.
“I can’t lie anymore,” Dion says in the documentary. “From a sinus infection to an ear infection to whatever. Sometimes I would point my microphone toward the audience, and I would make them sing it. There are moments where I cheated and I tapped on the microphone like it was the microphone’s fault.”
LONDON, ENGLAND – JULY 05: Celine Dion performs live at Barclaycard Presents British Summer Time Hyde Park at Hyde Park on July 05, 2019 in London, England. (Photo by Samir Hussein/Redferns)
In the documentary, there’s a part where Dion shows a very personal moment. She’s lying on a massage table doing exercises for her physical therapy when her foot suddenly starts to cramp. Soon after, her whole body tightens up and she can’t move or talk to the people around her.
The camera keeps recording as another person from her medical team rushes in with a nasal spray called benzodiazepine. They give it to Dion, who’s in so much pain that she’s crying, even though she can’t move. It’s really hard to watch this part of the video.
Once the spasms have subsided – they typically last anywhere from 30 minutes to an hour – Dion is able to sit up and speak.
“Every time something like this happens, it makes me feel so embarrassed,” she says. “I don’t know how to express it, you know, to not have control over yourself.”
Her physical therapist speculates the attack was brought on by being “overstimulated” from an earlier singing session.
“If I can’t get stimulated by what I love, then I’m going to go on stage, and you’re going to put the pulse oximeter on me and turn me on my back?” she wonders.
Dion hopes that one day soon she’ll be able to return to the stage.
I Asked to Be Cut from My Parents’ Will after Overhearing My Brothers’ Conversation
When Elena’s parents decided to leave her the family home, she expected her brothers to share in the joy. Instead, their hidden resentment leads to a revelation that changes everything. Will her decision to reject her inheritance heal old wounds or create new ones?
Growing up as the youngest and the only daughter in a tight-knit family had its perks and its challenges. But mostly, I felt cherished, surrounded by my parents and two protective older brothers, Kyle and Dean.
It was the kind of childhood you’d think was straight out of a feel-good movie—complete with raucous holiday gatherings, summer barbecues in our backyard, and the kind of parents who never missed a school play or a soccer game.
Last weekend was no different in its familial warmth, or so I thought as we gathered around the dining table, the familiar scents of mom’s cooking mingling with the soft murmur of catch-up conversations.
Our parents, though noticeably grayer and more deliberate in their movements, were as spirited as ever, their eyes twinkling with a kind of excitement you’d associate with kids planning a secret clubhouse meeting.
As we settled into the comfortable rhythm of passing dishes and sharing updates, Mom and Dad exchanged a glance—a silent nod that seemed to signal it was time for the ‘main event’ of the evening.
Clearing his throat, Dad announced, “We’ve been thinking a lot about the future, especially about this house, which has been a home to so many memories for us.”
Mom took over with a voice both soft and resolute, “We’ve decided that we want Elena to have the house in our will.”
The words landed on the table with a weight I hadn’t anticipated, stirring a mixture of surprise and gratitude in me. “Really?” was all I managed, my voice a mix of shock and a burgeoning sense of responsibility.
That’s when I noticed it—the poker faces on Kyle and Dean. As our parents continued discussing the details, my brothers clapped mechanically, their smiles not quite reaching their eyes.
Something in their expressions hinted at a private joke or a shared concern, hidden just beneath the surface of their orchestrated calm.
Trying to shake off a growing unease, I nodded and thanked my parents, though the look in my brothers’ eyes—hinting at something hidden—stayed with me.
After everyone had said their goodnights and the house quieted down, the small twinge of unease I felt earlier began to settle into the pit of my stomach.
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