Logan Pacl stands out among teenagers. At 17, he faces a rare illness known as Sanfilippo syndrome. Often called “childhood Alzheimer’s,” this cruel disorder gradually takes away a child’s cognitive skills, mirroring the effects of Alzheimer’s in older people. But he keeps fighting and uses social media to spread awareness about his condition.
At first, everything seemed normal.
Logan Pacl’s life is a battle against time. Diagnosed with Sanfilippo syndrome, often known as “childhood Alzheimer’s,” the 17-year-old from Silverdale faces a relentless genetic disorder that viciously strips away the very essence of childhood. Caused by a single defective gene, this neurodegenerative disease attacks the brain and spinal cord, leaving behind a cruel wake of lost abilities, seizures, and constant pain. It’s a ticking time bomb, as most children with this terminal illness don’t survive beyond their mid-teens.
For Logan’s family, the heartbreak began early. Born in 2007 with his twin brother Austin, Logan seemed like any other healthy baby. Both boys hit their developmental milestones—until Logan began to fall behind. A year in, the red flags emerged: while Austin was speaking, Logan remained silent. The difference between the brothers grew, signaling the start of a devastating journey.
Sanfilippo syndrome doesn’t just rob children of their future—it erases their past.
Then the news of the diagnosis hit the parents, something no one could have anticipated.
As Logan’s condition worsened, with chronic infections and a noticeably swollen belly, Noelle and William were left searching for answers. In January 2010, they learned that Logan had Sanfilippo syndrome, a terminal illness with no cure or treatment, and a life expectancy that typically extends only into the late teens. “I’ll never forget the day we got the phone call. The genetic counselor on the other end went on and on, and all I thought was, well get to the part on how we fix this. Then she said it, ’This disease is terminal, and there is no cure or treatment,’” his parents recall.
Noelle recalled her initial reaction, grappling with the news that the disease was terminal. The weight of the diagnosis was overwhelming, leaving her with a heart that felt as though it had dropped into her stomach. The severity of the situation rendered her unable to process much beyond the devastating reality.
Noelle described the experience of mourning not just the child she had but the life she had envisioned for him, a life that was abruptly stolen away. The medical advice they received was minimal and unhelpful, simply advising them to take Logan home and cherish their time with him. This lack of concrete guidance only deepened their sense of helplessness.
In their search for hope, Noelle and William discovered an experimental stem cell transplant through online research. Inspired by the success of another mother’s child, they decided to pursue the same treatment for Logan. So, Pacl went through a tough three-month treatment that was basically a bone marrow transplant. He had to endure chemotherapy to wipe out his immune system so it could accept the new stem cells. It was a risky procedure, but it seems to have helped with some of Logan’s physical symptoms.
His mother uses social media to spread awareness about his condition.
At 17, Logan’s life is very different from that of most teenagers. Losing his ability to speak at a young age was tough for him and his family, but over time, he’s become more easygoing. “Life with Logan is anything but typical. Each day is a battle to maintain the skills he still has,” his mother Noelle said.
Since 2020, Noelle has been a vocal advocate for Sanfilippo syndrome, using TikTok to share her family’s story. Her videos have reached a global audience, raising awareness about the disorder and encouraging other parents to seek early diagnosis for their children.
Although Logan’s future is uncertain, the Pacl family is committed to making the most of their time together. Noelle and William used to avoid thinking about what lies ahead, but now they focus on cherishing every moment with Logan and ensuring he enjoys his time to the fullest. Noelle notes that among Sanfilippo parents, there’s a bit of a joke that all their children seem like siblings, sharing similar features like bushy eyebrows, a low nasal bridge, and large, round stomachs.
Even with the demands of caring for Logan, Noelle keeps life as normal as possible for Logan’s siblings, Austin and Aidyn. She acknowledges that having a brother with special needs can bring its own set of benefits.
As for sharing Logan’s journey online, Noelle remains thoughtful about what she posts. While she plans to continue sharing, she’s careful to respect her family’s privacy. “We just live in the moment,” his mother said. “And if something comes up, and we’re like, we can make that, we’ll do it.”
People in comments react differently.
Mostly people express support and empathy.
- You take the most wonderful care of him. You are the greatest mom. © lauralang1108 / Instagram
But some show a bit of skepticism.
- Genuine question, what is your plan when you are gone? © devin_abq.505 / Instagram
- I just wanna know why it’s necessary. People have to publicize their children’s conditions. Why do people think that we all wanna know what’s wrong with your child? I feel sorry for the parents, but I don’t know why you want to put this all out there. I’m sure you have support group publicizing putting your child out there like this. © marlawomble / Instagram
Today, conversations about living with disabilities are becoming more open, especially on social media. Celebrities are sharing their experiences as parents of children with special needs, helping to normalize these discussions and inspire others. This shift fosters understanding and empathy, creating a more inclusive environment for everyone.
My Son Drew Pictures of a Strange Man — When I Asked Him, He Said, ‘He Comes to See Mommy When You’re at Work’
I was stunned when my son started drawing a grinning stranger. “He comes to see Mommy when you’re at work,” Oliver said innocently. Initially dismissing it as a childish fantasy, I soon spied a mysterious man entering our home, igniting a chilling quest for the truth.
I found the drawing while tidying up the dining table. Most of Oliver’s pictures were what you’d expect from a six-year-old: dinosaurs with rainbow scales, our house with a chimney that looked more like a volcano, and stick figures of our family holding hands. But this one made me pause.
A man frowning at a drawing | Source: Midjourney
Among the crayon scribbles was a tall figure with unnaturally long arms and huge hands, wearing what looked like a suit. The figure had an enormous grin that stretched across most of its face.
“Oliver,” I called out, trying to keep my voice casual as my fingers crinkled the edge of the paper. “Is this me in the picture? Who is this?”
My son looked up from his LEGOs, his blue eyes bright with excitement.
An excited boy with a bright smile | Source: Midjourney
The plastic blocks clattered as he dropped them onto the hardwood floor. “That’s Mr. Smiles, Daddy! He’s Mommy’s new friend. He comes to see her when you’re at work.”
My heart skipped a beat. Laura and I had been married for nine years. We’d had our ups and downs like any couple, weathered job changes and family losses, and celebrated promotions and birthdays. But never, not once, did I think she’d…
No, I shook the thought away. There had to be a reasonable explanation. Laura wasn’t that kind of person. We’d built too much together.
A concerned man holding a paper | Source: Midjourney
“When does he come over?” I asked, proud of how steady my voice remained despite the tremor in my hands.
Oliver stacked another block on his tower, his tongue poking out in concentration.
“Sometimes in the morning. Sometimes at night. He always makes Mommy and me laugh.” He glanced up, suddenly serious, his small face scrunching with the weight of importance. “But, Daddy, it’s a secret! Don’t tell anyone!“
An emotional man standing in a living room | Source: Midjourney
The mention of laughter and secrecy felt like ice in my stomach.
That night, I barely slept, watching Laura’s peaceful face in the darkness. The steady rhythm of her breathing, once comforting, now felt like a taunt. Every time she shifted in her sleep, I wondered what she was dreaming about. Who she was dreaming about.
The next day, I left work early, parked down the street from our house, and waited. The fall air grew crisp as the afternoon wore on, and fallen leaves skittered across my windshield. A little after 3 p.m., a sleek black car pulled into our driveway.
A black car parked in a driveway | Source: Pexels
A tall, wiry man stepped out and marched up to the front door. Even from this distance, I could see his broad smile when Laura welcomed him inside. The door closed behind them.
I gripped my steering wheel until my knuckles turned white; the leather creaking under my fingers.
“Maybe this is all in my head,” I whispered to myself, watching my breath fog the window. “But if I’m wrong, I need to know for sure.”
A man sitting in a car | Source: Pexels
Over the next few weeks, I started buying Laura flowers and gifts, trying to rekindle our bond, but I also began documenting everything.
The evidence piled up: receipts for dinners I didn’t attend, calls she’d leave the room to take, and, of course, more pictures of “Mr. Smiles” drawn by Oliver. Each new piece of evidence felt like another brick in a wall being built between us.
Laura noticed the change in me.
A woman staring at her husband during dinner | Source: Midjourney
“Are you feeling okay?” she asked one day, touching my forehead with concern. “You seem distracted lately.”
The genuine worry in her voice only confused me more. How could she act so normal if she was hiding something so huge?
“I… do you have someone else?” I asked.
“Someone else?” Laura stared at me with wide eyes, then shook her head.
A woman looking at her husband with wide eyes | Source: Midjourney
“Of course not, honey!” She let out a little chuckle. “How could you think that?”
Maybe I should’ve confronted her then, but all my evidence was circumstantial. I needed cold, hard proof.
One Friday evening, I told Laura I’d be working late. Instead, I set up a hidden camera on the bookshelf in the living room and watched the feed from my car parked around the corner.
A bookshelf in a living room | Source: Pexels
The screen of my phone cast a blue glow across my face as I waited, my coffee growing cold in its cup holder.
Right on schedule, Mr. Smiles arrived, and Laura greeted him with that same warm smile that used to be reserved for me.
But then something strange happened. He didn’t settle on the couch or share a private dinner. Instead, my sister walked in, and Oliver came bounding down the stairs with a beaming smile. More people arrived: neighbors and friends!
A man looking at his phone in confusion | Source: Midjourney
They all knew about this? And worse, they were having a secret get-together! I watched in stunned silence as Mr. Smiles, now wearing a festive party hat, juggled three oranges for Oliver and made him laugh.
“What the heck is going on?” I muttered, fumbling with my car door.
Rage and confusion propelled me toward the house. The evening air felt thick and heavy as I stormed up our front walk. I burst through the front door, making everyone freeze mid-conversation, the cheerful music cutting off abruptly.
A group of people in a living room staring at someone in surprise | Source: Midjourney
“Alright, you won,” I said, my voice trembling. “Everyone here knew, didn’t they? Even Oliver? Even my sister?”
“No, no! Please, stop!” Laura’s face had gone pale, her hands clutching a roll of streamers that cascaded to the floor.
I turned to Mr. Smiles, who had stopped juggling and was staring at me with wide eyes.
“You’ve disrespected me as a man, and you’ve got no business being here! It’s my house! It’s my…”
My voice trailed off as I spotted something shiny on the floor.
A man speaking angrily to someone | Source: Midjourney
A banner, not yet hung, with golden letters that read “Happy 10th Anniversary!” The metallic paper caught the light from our living room lamps, throwing sparkles across the ceiling.
The room went completely silent. Laura’s hands covered her mouth, tears welled in her eyes, and she smudged her carefully applied makeup. Mr. Smiles cleared his throat and stepped forward, his famous grin nowhere to be seen.
“Sir, I think there’s been a misunderstanding,” he said softly, his professional demeanor never wavering. “I’m a wedding planner and party animator. Your wife hired me months ago to plan this event — your wedding anniversary!”
A man speaking in a living room | Source: Midjourney
“You thought I was cheating on you?” Laura’s voice cracked with hurt and disbelief, each word falling like a stone between us.
I felt the floor shift beneath my feet. The room suddenly seemed too bright, too crowded, the decorations garish and mocking.
“I… I didn’t know what else to think,” I stammered, my collar feeling too tight. “I saw him coming here, and Oliver said a man kept visiting while I was at work, that this man made you laugh…”
An emotional man looking confused and shocked | Source: Midjourney
“Oliver said he made me laugh because he does magic tricks for him when we plan,” Laura interrupted, her voice rising. “I was trying to do something special for you, and you thought I was unfaithful?”
My throat felt tight. “I’m sorry,” I managed to say, the words feeling inadequate. “I was wrong. I let my insecurities get the better of me.”
Laura wiped her eyes with the back of her hand, leaving a dark smudge of mascara. “How could you think that? After everything we’ve been through?”
An emotional woman speaking to her husband | Source: Midjourney
The party guests began quietly filing out, murmuring awkward goodbyes, their shoes shuffling across our carpet.
My sister squeezed my shoulder as she left, whispering, “Fix this.” Oliver looked confused and scared, so Laura’s mother took him upstairs to his room, their footsteps echoing in the tense silence.
When we were finally alone, Laura sat on the couch, her shoulders slumped. The streamers lay in tangles around her feet.
An upset woman sitting on a sofa | Source: Midjourney
“I spent months planning this,” she said quietly. “I wanted it to be perfect. Remember our first anniversary? When you surprised me with that picnic in the park? I wanted to do something just as special.”
I sat beside her, careful to leave space between us, the cushions dipping under my weight. “I ruined everything.”
“Yes, you did.” She turned to look at me, her eyes red but fierce. “Trust isn’t just about believing in someone when everything’s perfect. It’s about believing in them when things don’t make sense.”
“I know,” I whispered, feeling the weight of my mistake. “I forgot that somewhere along the way. Can you forgive me?”
A couple having a serious conversation | Source: Midjourney
Laura was quiet for a long moment, her fingers tracing patterns on the fabric of her dress.
“I love you,” she said finally. “But this isn’t something I can just get over. You need to understand how much this hurts.”
I nodded, feeling tears start to fall. “I’ll do whatever it takes to make this right.”
“It won’t happen overnight,” she warned, her voice stern but not unkind.
A stern-looking woman speaking to someone | Source: Midjourney
“I know. But I’m not going anywhere.” I reached for her hand, and after a moment’s hesitation, she let me take it, her fingers cool against my palm. “Happy anniversary,” I said softly.
She gave a watery laugh that held both forgiveness and reproach. “Happy anniversary, you idiot.”
Upstairs, we heard Oliver laughing at something, probably one of his grandmother’s stories. The sound filled our living room, reminding us of all we had to lose, and all we had to save.
A couple in a living room glancing upwards | Source: Midjourney
This work is inspired by real events and people, but it has been fictionalized for creative purposes. Names, characters, and details have been changed to protect privacy and enhance the narrative. Any resemblance to actual persons, living or dead, or actual events is purely coincidental and not intended by the author.
The author and publisher make no claims to the accuracy of events or the portrayal of characters and are not liable for any misinterpretation. This story is provided “as is,” and any opinions expressed are those of the characters and do not reflect the views of the author or publisher.
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